OnkoRisk NET

The OnkoRisk NET project, in cooperation with Hannover Medical School (MHH), Dresden University Hospital and the Institute for Applied Health Services Research (inav), is investigating the use of telemedical human genetic counselling for patients and families with a genetic tumour risk syndrome. The central question of the project is whether this new form of care, which is associated with easier digital access to genetic diagnostics and counselling, can achieve an improvement in care compared to current regular care. The Hanover Center for Health Communication [HC]² is focusing in particular on the factors that influence the intention to use telemedical counselling and the experience of this and its outcome. This includes usage and channel-specific factors (e.g. expectation of benefits, technical understanding), competence and resource-specific factors (e.g. digital health competence) and health-specific factors (e.g. interest in information, risk perception).

Project Website

www.onkorisknet.de (only available in German)

Project Duration

June 2021 to March 2025

Publications

OnkoRiskNET: a multicenter, interdisciplinary, telemedicine-based model to improve care for patients with a genetic tumor risk syndrome (2022)

Tecklenburg, J., Vajen, B., Morlot, S., Anders, P., Memenga, P., Link, E., Baumann, E., Wölffling, S., Schröck, E., Bergmann, A. K., & Schlegelberger, B. (2022). OnkoRiskNET: a multicenter, interdisciplinary, telemedicine-based model to improve care for patients with a genetic tumor risk syndrome. BMC Health Services Research, 22, 805. DOI: 10.1186/s12913-022-08172-2


Presentations

How can human genetic counselling be better organised through telemedicine? An analysis of the use of time in human genetic counselling within the OnkoRiskNET project (2024)

Gscheidle, S., Arnold, M., Vajen, B., Scholz, C., Landgraf, C., Anders, P., Winterfeld, S., Memenga, P., Baumann, E., Wölffling, S., Böthig, J., Schröck, E., Schlegelberger, B., Tecklenburg, J. & Bergmann, A. K. (2024, March). Wie kann die humangenetische Beratung durch Telemedizin besser organisiert werden? Eine Analyse des Zeiteinsatzes in der humangenetischen Beratung innerhalb des OnkoRiskNET-Projekts. Presentation at the 16th dggö annual conference, March 4th to 5th, 2024, Halle (Saale), Germany.


OnkoRiskNET: A multicenter, interdisciplinary, telemedicine-based model to improve care for patients with a genetic tumor risk syndrome (2024)

Tecklenburg, J., Vajen, B., Scholz, C., Landgraf, C., Memenga, P., Baumann, E., Wölffling, S., Böthig, J., Schröck, E., Dubois, C., Gscheidle, S., Bergmann, A. K. & Schlegelberger, B. (2024, February). OnkoRiskNET: A multicenter, interdisciplinary, telemedicine-based model to improve care for patients with a genetic tumor risk syndrome. Poster presentation at the 36th German Cancer Congress (DKK), February, 21st to 24th 2024, Berlin, Germany.


 

Last modified: 2024-12-19

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